Got back from Hospital this afternoon. Spent Friday and Saturday with Tobias while Kasey came home for a break and to spend time with Skye. Hats off to Kasey, it is a tough slog as he is not sleeping through the night, I was up all night really as he drifted in and out of sleep while dealing with stomach pain and big windypops.

He is slowly coming back to normality however and each day is eating and drinking more, the main thing is we need to ensure he had a lot of fluids to ensure his catheter keeps flowing, is quite heartbreaking when he is such pain to make sure he has a bath twice a day even though he does not want to be moved, and make sure that he takes his medicine, paracetamol for pain is not so bad, but he is rather adverse to the taste of the antibiotics which are obviously very important to hold back potentila infection.

His surgeon is pleased with the way that the procedure went, and comes down quite hard on nursing staff if they are not following the correct procedure for dressing the operation area, and catheter position, so that gives us some confidence in his care.

We read lots of stories, watched some films and learnt his xmas concert songs, he is now sharing a room with another little lad who is also 3 and had a similar op on the same day, they sometimes comunicate with each other by action man walky talkies, so it’s not all boring, but we can’t wait for him to come home, it is soul destroying to see him going through this, and I was only there for 2 days, will be much harder for Kasey who will have racked up 8 days when he hopefully comes home Wed/Thur.

Hopefully he is sleeping better tonight, and Kasey manages to get some sleep also.

Goodnight little boy xxxx Daddy.